This portal has been created by the Center for the Study of Bioethics in order to promote awareness on rare diseases and to provide relevant information about rare diseases, medication, clinics etc.
Furthermore, we have created a forum where patients can exchange their experiences, get acquainted and connect. We firmly believe that one of the most important issues for patients suffering from rare diseases is networking with other patients suffering from the similar conditions, which can significantly shorten the process of finding appropriate treatment, medical help, psychological help etc.
On this portal:
– you will get relevant information about rare diseases
– you can join the forum and connect with people suffering from rare diseases
– you will find information on medication
– you can find regular news updates on the most important findings concerning rare diseases
– you will find information on clinics
– you can get expert opinions